Walter, spot on. I am retired doc, worked over 50 years in healthcare. MP50 is my pet.
I am looking at possibilities to give the patient charge of all data, make him the CEO of his health care. Some info about MP50: I want it to become open source (this month), working on that with Sosaro.com. It is designed so doctors-non-programmers can create dynamic questionnaires and built-in their expert knowledge. My vision is to develop a system like Overleaf.com which allows to adjust/copy paste code and immediately view the client-UI. https://plnkr.co/ has something like that as well. Unique to MP50 is that the patient is asked 250-1500+ questions in understandable language, and that the answers are compiled into a 1-2 page PDF, 3-second review, for the doctor, in all languages. See how it works at https://mediprepare.1systeem.nl/en/questionnaire/guest/ to view a sample PDF click button. The JSON-db can be reused by importing by the use of token. My dream is to store the PDF and DB in Solid.
Reusing the Solid POD lifelong: after creation of a PDF, the patient could login, get his latest PDF, update, create a new timestamped PDF that replaces the old PDF. That way every doctor always could view the updated Medical History and latest complaint. Each PDF can be translated into each language (we now have 2 languages in our MVP). I am working with MD’s on improving and expanding questionnaires for 130+ specialties, 100,000 diseases and 20,000 signa and symptoms.
MP50 does NOT deliver diagnoses except the known diagnoses (at source, the patient). However, interaction during appointments will improve the PDF by instructions by doctors to add say the Pacemaker number.
This save tremendous appointment-times. See my blog at Hans Hendrickx
Best-Care=Function of (time) and (information).
In short: How to use Solid PODs in this model, and NOT store any data on our server. We believe each clinic could use their own server in cloud or on premises. This is modeled by f.e. Divio.com. I would like to focus on the medical content, IT-company focus on the servers and programming. To maintain the open source I need some recurrent income from the best questionnaires and translations. MP50 should become available to each patient in the world. That way patients can help their providers at the on average 500 care-contacts during their life. The Medical History is available by linked-data/information model: one source, one owner.
Any further suggestions? I appreciate your analysis.